TRACKING IH SYMPTOM SEVERITY: IHSS

Idiopathic Hypersomnia Severity Scale

The is a brief, validated, 14-question, patient-reported assessment covering IH symptoms. Some evaluation examples include1,2:

Sleep inertia

Finding it extremely difficult or even impossible to wake in the morning without several alarm calls or the help of someone else.

Impaired daytime alertness

Hypersomnolence that impacts general health, intellectual functioning, mood, performing daily tasks properly, including driving a car.

Prolonged and unrefreshing daytime and nighttime sleep

Feeling that you have not had enough sleep when required to get up at a particular time.

  • All 14 questions are on a scale of 0 to 3 or 0 to 4, totaling up to 50 points1
  • The higher the score, the more severe/frequent the symptoms1
  • For the score, the minimal clinically important difference (MCID) is 4 points3

The IHSS can help assess your patient's IH symptoms

Download the IHSS

Wonder what may be causing IH?

See possible IH causes

References
  1. Dauvilliers Y, Evangelista E, Barateau L, et al. Measurement of symptoms in idiopathic hypersomnia: the Idiopathic Hypersomnia Severity Scale. Neurology. 2019;92(15):e1754-e1762.
  2. Dauvilliers Y. Idiopathic hypersomnia severity scale. 2018. Accessed August 7, 2024, 2022. http://links.lww.com/WNL/A854.
  3. Rassu AL et al. Idiopathic hypersomnia severity scale to better quantify symptoms severity and their consequences in idiopathic hypersomnia. J Clin Sleep Med. 2022;18(2):617-629.