Tracking IH Symptom Severity: IHSS

The Idiopathic Hypersomnia Severity Scale (IHSS) was specifically designed to evaluate Idiopathic Hypersomnia (IH) symptoms

The is a brief, validated, 14-question, patient-reported assessment covering IH symptoms, including¹:

Prolonged and unrefreshing daytime and nighttime sleep
Impaired daytime alertness
Sleep inertia

All 14 questions are on a scale of 0 to 3 or 0 to 4, totaling up to 50 points¹
The higher the score, the more severe/frequent the symptoms¹

Score of 0 to 12 is mild, score of 13 to 25 is moderate, score of 26 to 38 is severe, score of 39 to 50 is very severe

Score of 0 to 12 is mild, score of 13 to 25 is moderate, score of 26 to 38 is severe, score of 39 to 50 is very severe

For the score, the minimal clinically important difference (MCID) is 4 points²

You can start using this tool to help assess the severity of IH symptoms
in your patients today.

Download the IHSS

Wonder what may be causing IH?

See possible IH causes

References:

Dauvilliers Y, Evangelista E, Barateau L, et al. Measurement of symptoms in idiopathic hypersomnia: the Idiopathic Hypersomnia Severity Scale. Neurology. 2019;92(15):e1754-e1762.
Rassu AL et al. Idiopathic hypersomnia severity scale to better quantify symptoms severity and their consequences in idiopathic hypersomnia. J Clin Sleep Med. 2022;18(2):617-629.